My name is Tripp and I am 1 in 10,000 kids who has CHARGE Syndrome. “CHARGE” is an acronym for different areas that can be impacted in people with the syndrome. These include: Coloboma (I wear glasses), Heart defects (I had open heart surgery as a baby), Atresia choanae (I had no nasal passages when I was born), Growth retardation, and Ear abnormalities. CHARGE often causes vision and hearing impairments. I am deaf on my left side and have hearing loss on the right. I have a BAHA hearing aid that sits on my headband which allows me to hear. I also use sign language to communicate! My shirt is red for heart disease awareness. I’m holding a book because I love to read! My butterfly is a zebra pattern which is the symbol for rare diseases like CHARGE syndrome.
Perfect Through and Through 