My name is Matthew! I have Nager Syndrome which is a genetic mutation in a protein gene that affects the way the bones grow. It mainly affects my jaw which is small and recessed back causing my tongue to fall over my airway, so I have a trache. This also causes the lower bones of the jaw to hit the upper ones so I cannot open my mouth more than a few centimeters. I have a G-tube for nutrition. Sometimes this syndrome affects the limbs. I was born without thumbs and one arm is small and bowed giving me a club hand. This syndrome also tends to affect the bones in the middle ear causing hearing problems, so I wear cochlear hearing aids. I love my iPad and learning! I love anything educational and have a photographic memory. My butterfly has orange which is a color for developmental disability awareness.
Perfect Through and Through 