
My name is Lucy and I am 1 in 40,000 who was born with a sacrococcygeal teratoma tumor. When my mom was pregnant with me, my parents went to two different doctors who said I wouldn’t make it to delivery because my tumor was so large. My parents refused to give up on me and searched across the country to find a hospital that gave them hope. I am a fighter!
I have neurogenic bladder which means my nerves are damaged and don’t communicate properly from my brain to the bladder. This leads to trouble controlling my urine. I started doing catheters every few hours to empty my bladder when I was 1.5 years old, after being hospitalized multiple times for urinary tract infections. Catheters have changed my life! They keep me free of UTIs and they make sure my bladder and kidneys stay healthy!
I love playing with dinosaurs and fire trucks. My butterfly is blue because I have a blue “iconic Lucy” shirt which I’m pictured in above.