Meet the 28 Real Life Characters from Perfect Through and Through
My name is Nyomi and I am 1 in 40,000 who was born with a sacrococcygeal teratoma tumor. The tumor formed at the base of my spine. Due to multiple surgeries and the location of the tumor, I have some nerve damage that impacts my bowel function. I use enemas to avoid constipation. You would never know that I have any nerve damage just by looking at me. I love all things princesses and my favorite colors are pink and purple, which are the colors of my butterfly!
My name is Tripp and I am 1 in 10,000 kids who has CHARGE Syndrome. “CHARGE” is an acronym for different areas that can be impacted in people with the syndrome. These include: Coloboma (I wear glasses), Heart defects (I had open heart surgery as a baby), Atresia choanae (I had no nasal passages when I was born), Growth retardation, and Ear abnormalities. CHARGE often causes vision and hearing impairments. I am deaf on my left side and have hearing loss on the right. I have a BAHA hearing aid that sits on my headband which allows me to hear. I also use sign language to communicate! My shirt is red for heart disease awareness. I’m holding a book because I love to read! My butterfly is a zebra pattern which is the symbol for rare diseases like CHARGE syndrome.
My name is Lucy and I am 1 in 40,000 who was born with a sacrococcygeal teratoma tumor. When my mom was pregnant with me, my parents went to two different doctors who said I wouldn’t make it to delivery because my tumor was so large. My parents refused to give up on me and searched across the country to find a hospital that gave them hope. I am a fighter!
I have neurogenic bladder which means my nerves are damaged and don’t communicate properly from my brain to the bladder. This leads to trouble controlling my urine. I started doing catheters every few hours to empty my bladder when I was 1.5 years old, after being hospitalized multiple times for urinary tract infections. Catheters have changed my life! They keep me free of UTIs and they make sure my bladder and kidneys stay healthy!
I love playing with dinosaurs and fire trucks. My butterfly is blue because I have a blue “iconic Lucy” shirt which I’m pictured in above.
My name is Jackson and I have ADHD. ADHD can make it difficult for me to focus. I take daily medicine which helps me focus and helps with my self-control. I am wearing one of my soccer shirts because I enjoy sports, especially soccer and hockey. My butterfly is orange which is the color commonly associated with ADHD.
