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Thank you, Zoey, for teaching us about SMA and sho

Thank you, Zoey, for teaching us about SMA and showing us the tools you use to thrive!

Spinal Muscular Atrophy (SMA) is a rare genetic condition that affects the muscles used for movement, breathing, and everyday activities. SMA affects approximately 1 in 10,000 babies.

Children with SMA may use wheelchairs, power chairs, breathing equipment, or other assistive devices!

Thanks to incredible advances in treatment and newborn screening, more children with SMA are receiving life-changing care earlier than ever before! #sma #spinalmuscularatrophy #educate #kids #awareness

May is Brain Tumor Awareness Month, also known as

May is Brain Tumor Awareness Month, also known as #GrayMay. 🩶 Brain tumors can impact kids in many different ways. Some children may experience headaches, seizures, vision changes, balance difficulties, fatigue, memory challenges, or changes in speech and learning. Others may lose their hair during treatment or spend long periods in the hospital. #braintumor #kids #educate #awareness

It’s Tracheostomy Awareness Week! A tracheostomy (

It’s Tracheostomy Awareness Week! A tracheostomy (“trach”) is a surgically created opening in the neck that helps a person breathe through a tube placed directly into the windpipe. Children may need a tracheostomy for many different reasons, including airway differences, lung disease, neurological conditions, vocal cord paralysis, injuries, or long-term breathing support. #trach #trachbaby #tracheostomy #kids #educate

Ending Food Allergy Awareness Week by talking abou

Ending Food Allergy Awareness Week by talking about how allergies can impact children at school. From reading every label and avoiding shared snacks to sitting at allergy-safe tables and carrying EpiPens, many children with food allergies have to think about their safety throughout the entire school day in ways their classmates may never realize. Even something as simple as lunchtime or a classroom celebration can require extra planning, caution, and awareness. #allergies #allergyawareness #educate #awareness #kids

It’s Vasuclar Birthmark Awareness Day! Hemangiomas

It’s Vasuclar Birthmark Awareness Day! Hemangiomas are the most common benign tumor in infants, affecting approximately 1 in every 10 children. These birthmarks are made up of extra blood vessels and often appear within the first few weeks of life. Some are bright red and raised (“strawberry marks”), while others may appear bluish beneath the skin.

Most hemangiomas are harmless and gradually shrink over time on their own. However, some children may require treatment if the hemangioma affects breathing, vision, feeding, hearing, or becomes painful. Treatments can include medications like Propranolol, topical creams, laser therapy, or surgery. #hemangioma #vascularbirthmark #awareness #children #educate

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